So much going on at the minute.....
It's the Summer holiday's and we've done all sorts of lovely things. Cerebral Palsy and seizures won't hold this boy down!!
Ash has discovered a new found love of horses. It's wonderful to be able to give her something that is JUST for her. All too much of what we do revolves around Zak and his needs, so this is huge!
It stems from our annual holiday at Ribby Hall near Blackpool. There's an equestrian centre on-site, so she was riding every day! and loved it!! She's now all kitted out with jodhpurs and riding boots, and she's enrolled in the local riding School.... One very proud Mummy here!
Look at that smile!!
So, we have been on holiday, to Blackpool. We planned on doing a few of Zaks favourite things while we were there, and yes, we did manage to do them, but thanks to the addition of Topirimate (yet another drug to try and win the war on Epilepsy), Zak spent the majority of his time fast asleep, and missed it all!. He missed the Zoo, the sealife centre, the beach, the bike ride....the lot!
So, what could we do, but go to the zoo again! As the top pic shows, he managed, just, to stay awake throughout.
It was a great day, lots of fun.... even being chased by a monkey keeon on getting its little hands on Zaks medicine in his bag, didn't stop the fun.
While all this fun is being had, we have also, finally, enlisted the help of a carer.
Zak is 5 now. He's not getting any lighter, and his care needs just get more and more. I've always hated the idea of getting a carer in. It's alien to me to have someone else in my house, doing my job!
So, tentatively, we have taken the step to go for it. And we welcome S to the family.
As you can tell from the picture, she has LOTS of fun things to do, and plenty of enthusiasm!
I'm slowly getting used to the idea, although I still find it hard to step back and just let them get on with things..... but I'll get there!
I think it will be much easier when we get the house extended.... and on that matter, things are moving forward.
Now that Zaks case is settled, we finally have the means to give wee man all the things he needs to have as full a home life as possible. We are converting the garage into a downstairs bedroom/bathroom.... extending the front of the house to make space for a sensory/therapy room and larger entrance for wider access.... we're widening the doors, and most exciting of all, he is getting his very own hydrotherapy pool!! (another thing ticked off his bucket list!)
All of this is going to make such a massive difference to all our lives! Zak can have the therapies he needs, light, music, water... our carer will have room to do everything she wants without us breathing down her neck, and we can have time off! which will be lovely!
The work is due to start mid October, so watch this space for updates and pics!
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