Wake up call....

There have been times on this journey when you realise just how lucky we are to be alive. There have been so many ups and downs that the old analagy of it being a Rollercoaster is bang on the mark. The bad thing though, about these rollercoaster, is that every ride eventually has to come to an end.
Harvey
Josh
Tahnee
Amy
Toby
Bradley
Ella
So many, too many, children have already lost their battle. And with each death, the fear that our time is just around the corner becomes more and more real.
Finding the right words to give those families the support they so desperately need is just about impossible. Partly because you don't want to sound like a cliche, partly because you are scared that if it comes out wrong, at a time when emotions are so raw, it will hurt or offend them.... but also because you know you will one day be in their position, and the fear just eats you up.... you can never know 'how they feel' or 'what they must be going through'... not until it happens to you.
The analagy of the Rollercoaster becomes even more real.... You start the journey full of hope and fear and excitement.... you have many ups, downs, twist and turns, you throw up, you squeel with excitement, you cry in pure fear........and it suddenly, with no warning comes to an abrupt end.... and it's at that point only, that you realise how much fun it was and that you would give ANYTHING to have another go.... Sadly though, we can't. So because I have seen the end of too many of my friends rollercoaster rides... it has made me realise that we have to take the opportunities in life when we can... don't let disability get in the way, where possible...if there is a way, try to find it!
None of this can prepare me for the end of our ride.... but like the title of this blog, you  CAN'T HAVE YESTERDAY... That is ours and ours alone. These memories we are making right now, are what I will have left when this all ends. So now, my job, is to make the best memories possible, in hope that one day, I'll be able to look at them and smile.
Sending love out to all those who have lost their children. I hope you are looking back at your own memories and smiling now.... even if for now, it's just a glimps of a smile among the tears and heart break...xxx